St Hubertus & Oak Bay Estate Winery in Kelowna has teamed up with Complete Core Pilates for the fifth annual Pinot & Pilates event to raise funds for Parent Project Muscular Dystrophy.
The July 6 event is to help families living with Duchenne Muscular Dystrophy (DMD), a disease which primarily affects boys, however it occurs across all races and cultures. Young men with Duchenne typically live into their late twenties.
香蕉视频直播淲e expect about 75 people to take part in the event, many whom are completely new to Pilates,香蕉视频直播� said organizer Kyla Ramirez. 香蕉视频直播淚 started Pinot & Pilates with St. Hubertus so we could build awareness and raise funds to help families living with Duchenne Muscular Dystrophy (DMD), the most common fatal genetic disorder diagnosed in childhood.香蕉视频直播�
Ramirez is close friends with the Beaulieu family who are raising three boys, two with DMD. The Beaulieu香蕉视频直播檚 are an inspirational family, traveling and living life to the fullest with their boys.
香蕉视频直播淎ll of this news is brutal but these are our boys and we香蕉视频直播檙e going to keep giving them the best life we can every day,香蕉视频直播� said Steve Beaulieu in a video documenting their journey.
香蕉视频直播淚 just feel gratitude every day to be with the boys and to have them in my life香蕉视频直播� said Michelle Beaulieu. 香蕉视频直播淔or us, every day, every moment, every breath is priceless and we香蕉视频直播檒l cherish it as long as we can.香蕉视频直播�
Ramirez explained that helping out at the event is easy.
香蕉视频直播淎ll you need to do to attend Pinot & Pilates is come to the event at St Hubertus on July 6 at 7 p.m. with your mat, towel, and a donation which goes directly to research with Parent Project Muscular Dystrophy. We ask people to RSVP as 香蕉视频直播楪oing香蕉视频直播� on our so we can plan for the wine tasting. And of course, people should be prepared to enjoy the view, Pilates in the vineyard, and some fine wines. We want people to learn more about DMD as well as relax and have fun.香蕉视频直播�
For more information about the Beaulieu family and Duchenne Muscular Dystrophy (DMD):
https://www.resmed.com/us/en/changinglives.html
EndDuchenne.org
